Meet the ESMI partners
Deutsches Zentrum für Neurodegenerative Erkrankungen, DZNE
Contact: studienassistenten-bonn@dzne.de; Tel.: 0049-228-43302-843/842
Prof. Dr. Thomas Klockgether
Coordinator
Dr. Jennifer Faber
Deputy
Mónica Ferreira
MR Study Coordinator
Dr. Anna Esser
MR Study Coordinator
Dr. Anne Boehlen
Study Coordinator
Department of Neurology, Expert center for rare and genetic movement disorders, Radboud university medical center, Nijmegen, The Netherlands
Contact: info@onderzoek-ataxie.nl
Prof. Dr. Bart van de Warrenburg
Site PI
Janneke Rigter
Study Coordinator
Department of Neurology and Center for Translational Neuro- and Behavioral Sciences (C-TNBS), Essen University Hospital, University of Duisburg-Essen, Essen, Germany
Contact: Friedrich.erdlenbruch@uk-essen.de, +49 201 723 2180
Prof. Dr. Dagmar Timmann
Site PI
Dr. Friedrich Erdlenbruch
Study Coordinator
Dr. Andreas Thieme
Local Contact
Faculdade de Ciências e Tecnologia, Universidade dos Açores, Ponta Delgada, Portugal
Contact: Dr. Lima: maria.mm.lima@uac.pt , +351 296 650 118; Dr. Raposo: mafalda.sb.raposo@uac.pt
Dr. Manuela Lima
Site PI
Dr. Mafalda Raposo
Study Coordinator
Referral Center (CSUR) for ataxia and HSP patients. Neurology Service. University Hospital Marqués de Valdecilla, Santander, Spain
Contact: rmatinez@idival.org; 0034942202507
Dr. Jon Infante
Site PI/Study Coordinator
Universitätsklinikum Heidelberg | Neurologische Klinik
Contact: heike.jacobi@med.uni-heidelberg.de
PD Dr. med. Heike Jacobi
Site PI/Study Coordinator
Department of Neurology, University Hospital RWTH Aachen, Aachen, Germany
Contact: kreetz@ukaachen.de
Prof. Dr. Kathrin Reetz
Site PI/Study Coordinator
Center for Neuroscience and Cell Biology (CNC), University of Coimbra, Portugal
Contact: luispa@cnc.uc.pt
Prof. Dr. Luis Pereira de Almeida
Site PI
Dr. Magda Santana
Study Coordinator
University College London, UK
Contact: p.giunti@ucl.ac.uk
Prof. Dr. Paola Giunti
Site PI
Dr. Hector Garcia-Moreno
Study Coordinator
Department of Neurodegenerative Diseases, Hertie Institute for Clinical Brain Research, University Hospital Tübingen, Germany
Contact: ludger.schoels@uni-tuebingen.de
Prof. Dr. Ludger Schöls
Site PI
Dr. Jeannette Hübener-Schmid
Site Co-PI
Dr. Susanne Stimmler
Local Contact
Our Partners
The ESMI consortium has 10 partners in 5 European countries.
German Center for Neurodegenerative Diseases (DZNE), Bonn, Germany
University College London, UK
Fundacäo Gaspar Frutuoso (FGF), University of Azores, Ponta Delgada, Portugal
Center for Neuroscience and Cell Biology (CNC), University of Coimbra, Portugal
University Hospital Tübingen, Germany
Radboud University Medical Center (RUMC), Nijmegen, The Netherlands
University Hospital Aachen, Germany
University Hospital Essen, Germany
University Hospital Heidelberg, Germany
Fundacion Instituto de Investigacion Marques de Valdecilla, Santander, Spain
ESMI is collaborating with patient organisations.
- Ataxia UK: https://www.ataxia.org.uk/
- EuroAtaxia: https://www.euroataxia.org/
- Deutsche Heredo-Ataxie-Gesellschaft (DHAG): https://www.ataxie.de/
- Associação Atlântica de Apoio aos Doentes de Machado-Joseph (AAADMJ): https://www.aaadmj.pt/
ESMI is collaborating with pharmaceutical industry.
- Servier: https://servier.com - https://www.dzne.de/en/news/press-releases/press/european-partnership-between-academia-and-pharma-to-study-sca3-ataxia/
- Ataxia Global Initiative (AGI) - https://ataxia-global-initiative.net/